Well, here I go again. I have had this blog for 4 years and this is only my 3rd post. At least I have been consistent, with my two year postings, haha.
I am in a very different space to previous post, my last being two years ago. I am hoping to be able to do this on a more regular basis and to feel confidant enough to do it in a public space, but we’ll see how that goes.
In my last post, I spoke of the shock of my diagnosis, but 2 years down the track, I am now at peace. Having a diagnosis of dementia is not something that I could have seen myself living with confortably, but now it is different.
I am very lucky that I am still functioning pretty well. Of course there are variations on a day to day basis, but on the whole I can still do most of the things that I want to do, just slower and more clumsily.
I became a dementia advocate, around 18 months ago, and now speak confidently about living with dementia in open forums. I am heavily involved in a number of research programs, and sit on numerous committees. I have many friends, living with dementia, as well as my longer term friends, who on the whole are understanding and supportive of me. My friends who either have a diagnosis of dementia or support someone who does, are like a family. We get each other, which give us the opportunity to speak and act freely without fear of judgement or reprisal.
I am aiming to keep these blogs short and to the point, so won’t drone on too much today. If I am able to folow through on my plan, I wil be writing short contributions every couple of days, or when I have something interesting to say, so hopefully will build up a fuller picture of my life, as it now stands. I fear that my posts will not be as professional or interesting as many of my cohort, but I will do my best to give a good representation of how it is to live with dementia. Be patient with me.